I’m Alan and sadly I have cerebellar ataxia so I have difficulty walking and talking . 3 years ago I was ok
Discussion in Rare, invisible, and undiagnosed conditions - 18 Aug 2019
My husband has a progressive brain condition Cerebellar Ataxia so is no longer able to work.
Discussion in Rare, invisible, and undiagnosed conditions - 18 Apr 2018
I an new member from Sweden. I am a 47 years old male. 13 years ago my neurologic doctor investigated me and told me I had a neurologic disability I did not knew I had. He said that my neurologic ...
Discussion in Rare, invisible, and undiagnosed conditions - 19 Nov 2016
im a retired man and formally a full time carer to my daughter who has early onset Cerebellar Ataxia and now im her part time carer.. Joined Scope for support and feed back as regards others in ...
Discussion in Start here and say hello! - 22 Mar 2016
So I want to just share my condition that I have with you all. When I was younger, (around 6 or 7) I had an infection of the cerebellum causing me to lose my motor functions which I had to learn ...
Discussion in Talk about your impairment - 11 Mar 2025
Good Morning All. As I am new here please excuse this post as I am sure it has been covered many many times before. I am living with Cerebellar Ataxia (thought to be SCA 19/22) - I dont like the ...
Discussion in PIP, DLA, and AA - 4 Jun 2021
Hello Sir I'm from Pune, Maharashtra, India Age 44 years married with 2 kids. I have a problem of cerebellar spordiac ataxia, due to this cant walk alone without any ones support. So I'm jobless ...
Discussion in Start here and say hello! - 13 Jan 2018
Initial PIP consultation gave my partner "standard" living needs rate and nothing for "mobility" needs. I sent a letter for the mandatory reconsideration (this took 4 months for their decision). I ...
Discussion in Benefits and financial support - 21 Aug 2017
I'm new to scope, I am having major problems with Capita over telephone assessment,the assessment failed twice, because the assessor is not allowing the phone long enough to ring for me to answer it.i ...
Discussion in PIP, DLA, and AA - 19 Sep 2021
I have cerebellar ataxia. I use a 3 wheeled walker and wheelchair coz cant walk any distance. Stay in house with stairs. Cant get ground floor flat. Been on waiting list for years and have max. points ...
Discussion in Start here and say hello! - 3 Mar 2015
