Usher Syndrome
Hello. Was wondering if anyone else has usher syndrome ?
Discussion in Talk about your impairment - 16 Aug 2021
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PIP and ESA
Hi there, I have just joined ans wanted to get some advise. I was born with ushers syndrome this is a genetic disorder which leads fo progressive loss of hearing and vision and I get older. I am 47 ...
Discussion in PIP, DLA, and AA - 27 Sep 2023
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What’s your experience of growing older as a Black British person with lifelong disability?
University Ref: FHMS 22-23 214 EGA V2 26/07/23 WE WOULD LOVE TO HEAR FROM YOU What’s your experience of growing older as a Black British person with lifelong ...
Discussion in Cerebral palsy - 11 Sep 2023
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Hi, my name is SoniaJaneFazz!
Hi all. I'm Sonia, aged 43 and I have Usher Syndrome Type 3 ie Blind and partially deaf and many other health issues.
Discussion in Start here and say hello! - 27 Jan 2018
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Isolated: waiting list for a guide dog
Hey I am new to here I have usher syndrome and am registered SSI/blind ( due to retinitis pigmentosa) and on waiting list for a guide dog I find it so hard to make friends , miss going out for ...
Discussion in Disability rights and campaigning - 8 Jan 2020
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Severely sight impaired/deaf waiting on claim, some questions.
Hello, Firstly thanks for all the contributors on here, I've absorbed a lot of useful info and your time is appreciated. Long story short: I have usher syndrome so I am losing my eyesight (I am now ...
Discussion in PIP, DLA, and AA - 17 Jan 2022
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Hello
Hello, my name is malc66. I have Usher Syndrome and have been registered blind for quite a few years.
Discussion in Start here and say hello! - 16 Aug 2021
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What’s your experience of growing older as a Black British person with a lifelong disability?
Adult Recruitment Poster University Ref: FHMS 22-23 214 EGA V5 14/05/24 What’s your experience of growing older as a Black British person with a lifelong disability? Are you 30 years ...
Discussion in Cerebral Palsy Network - 5 Jun 2024
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