Hi, I am a new mum and having difficulty feeding my baby by a bottle now he has grown out of his sling! Any other mothers out there who have any solutions for me or can recommend equipment/furniture ...
Discussion in Children, parents, and families - 3 May 2022
Hi all, I am a young adult with Athetoid Cerebral Palsy. I am currently looking into having a PEG or Feeding tube in as I am concerned about my calories and fluid intake. My question is, is it my ...
Discussion in Cerebral palsy - 23 Oct 2020
Hi... So that probably sounds crazy. For years now I've suffered from the inability to gain weight. I've recently been dropping I'm at a BMI of 15.6 which isn't super low, but things are only getting ...
Discussion in Disability rights and campaigning - 28 Mar 2019
My son is now 3.5 years old and so far has been diagnosed with PVL leading to CP, sensory processing disorder, speech & language delay & disorder, dairy intolerance and failure to thrive. It's the ...
Discussion in Children, parents, and families - 18 Mar 2013
Hi guys I know I just posted but I had one more question: I am beginning to see my disability differently in terms of feeding. Last year I didn’t care what I would look like and sometimes I would ...
Discussion in Cerebral palsy - 19 Feb 2020
Hi I have just joined this community forum and would like to introduce myself and explain a little about our daughter and her condition. Both mum and I are becoming concerned about her overall ...
Discussion in Children, parents, and families - 2 Apr 2018
hi i have a feeding tube all my life. my current tube has been in since 2017. what is the lifespan for a tube in an adult body? - in the 4 years i had infection after infection and sometimes it ...
Discussion in Cerebral palsy - 6 Mar 2024
Has anyone have a feeding tube? I have a feeding tube and it is would be nice to have a discussion about it.
Discussion in Coffee lounge - 22 Oct 2021
Dear All, We have receive funding at City, University of London, to explore the experiences of children and young people who have experienced gastrostomy tube feeding. This would be a one off ...
Discussion in Research and opportunities - 16 Mar 2017
The heading of this sounds like we are new to this but Noah, our 5 year old son, has had a PEGJ since being 5 months old. We are SO frustrated right now. Noah had undergone very few tests to get to ...
Discussion in Children, parents, and families - 1 Feb 2023
