Hi all, I am a young adult with Athetoid Cerebral Palsy. I am currently looking into having a PEG or Feeding tube in as I am concerned about my calories and fluid intake. My question is, is it my ...
Discussion in Cerebral palsy - 23 Oct 2020
Hi... So that probably sounds crazy. For years now I've suffered from the inability to gain weight. I've recently been dropping I'm at a BMI of 15.6 which isn't super low, but things are only getting ...
Discussion in Disability rights and campaigning - 28 Mar 2019
My son is now 3.5 years old and so far has been diagnosed with PVL leading to CP, sensory processing disorder, speech & language delay & disorder, dairy intolerance and failure to thrive. It's the ...
Discussion in Children, parents, and families - 18 Mar 2013
hi i have a feeding tube all my life. my current tube has been in since 2017. what is the lifespan for a tube in an adult body? - in the 4 years i had infection after infection and sometimes it ...
Discussion in Cerebral palsy - 6 Mar 2024
Has anyone have a feeding tube? I have a feeding tube and it is would be nice to have a discussion about it.
Discussion in Coffee lounge - 22 Oct 2021
Dear All, We have receive funding at City, University of London, to explore the experiences of children and young people who have experienced gastrostomy tube feeding. This would be a one off ...
Discussion in Research and opportunities - 16 Mar 2017
Hi, I have a 18 year old daughter, she has suffered awful with her stomach since 2017, she has had many hospital admissions, gp appointment’s, loads of bloods, ct, mri, ultrasound, cameras, pill cam ...
Discussion in Rare, invisible, and undiagnosed conditions - 1 Jun 2021
Hello. My niece is seven years old and has Down syndrome. She has been tube fed her full life but we have tried (on the advice of S&L) to continue trying her with wee bits of solids and some water, ...
Discussion in Children, parents, and families - 25 Sep 2022
Hi I have just joined this community forum and would like to introduce myself and explain a little about our daughter and her condition. Both mum and I are becoming concerned about her overall ...
Discussion in Children, parents, and families - 2 Apr 2018
Hi, I’m Alex. I live with my husband, our three children and two grumpy guinea-pigs. My middle child, four-year-old Benjamin, has an undiagnosed genetic condition causing brain abnormalities, ...
Discussion in Disability rights and campaigning - 28 Aug 2018
