Support for a child without a diagnosis

Your child does not need a diagnosis to claim Disability Living Allowance (DLA).

Your child could be eligible if they need more support than a non-disabled child of the same age. Your child can be any age, but it can be easier if your child is 3 or older. This is because all children under 3 years old usually need a lot of support.

To be eligible, your child must need support with either:

• personal care and support
• going outdoors and unfamiliar places

Eligible personal care means at least 1 hour extra spent supporting them:

• getting dressed
• going to the toilet
• managing their distress or anxiety
• to sleep or settle at night or if they do not sleep

Your child could also be eligible if any of the following apply. Your child:

• feels distressed going into busy places, like shops
• is not cautious around strangers
• does not understand that things can be dangerous for example, cars or grabbing hot drinks

Disability Living Allowance

Your child does not need a diagnosis to get SEN Support either:

• before they go to school
• or at school

SEN Support

SEN Support before your child goes to school

Speak to your local authority for guidance on Special Educational Needs (SEN) support services and special education schools. Some areas provide home visits (sometimes called portage) for preschool children with Special Educational Needs.

Portage in your region (National Portage Association)

SEN Support at school

If your child is at school, ask the SEN co-ordinator (SENCO) about the school’s SEN policy and what support your child can get. Schools must make reasonable adjustments for your child.

Talking to your child’s school

If SEN Support is not enough

If your child has a SEN plan and they need more support, an Education, Health and Care (EHC) plan can help. People also call this an EHCP.

You do not need a diagnosis or your school to support you, but both of these things can make it easier.

Education, health and care (EHC) plans

Your child could be eligible under the Children Act 1989 if they are under 18, and either:

• cannot meet a reasonable standard of health or development without local authority support
• are disabled, which includes a paediatrician or doctor identifying your child’s needs without a diagnosis

Getting a needs assessment for your child

Contact your local authority to ask for a needs assessment for your child.

The assessment should consider what is needed to make daily life easier. You do not need a diagnosis to have an assessment or get support.

Your local authority will recommend services and support that your child needs. You can ask for a review if something is missing, such as a bathing aid.

Getting a social care needs assessment

You can call your local authority and ask for needs assessments for children.

A member of the team will talk to you face to face or on the phone to assess your child’s and family’s needs.

Contact your local authority (GOV.UK)

Support for parents

Ask for a carer’s assessment as well as a needs assessment for your child.

Carer’s assessment

Respite care, also called short breaks, is temporary care that lets you take a break from looking after your child.

Finding respite care

If your child is away from home

In England, your local authority may provide extra services if your child is away from home for at least 3 months in places such as a:

• hospital
• care home
• residential school

These extra services may include:

• advice, guidance, counselling
• family visits to the place of care
• visits home
• help to organise a holiday for family members to be together

Find the Local Offer on your local authority’s website. It will list the services they have for disabled children and their families.

Contact your local authority (GOV.UK)

The Local Offer should include an independent advice service for parent carers. They have different names, for example:

• Parent Partnership
• Special Educational Needs and Disabilities Information Advice and Support Service (SENDIASS)
• Information Advice and Support Service (IASS)

Find your local Information Advice and Support Service (Council for Disabled Children)

Find your local parent carer forum (Contact)

Services vary but may include:

• daycare facilities for preschool children
• holiday play schemes
• financial help
• care at home
• advice, guidance and counselling
• social, cultural or recreational activities
• sport and leisure support
• family centres
• some home aids and minor adaptations, such as handrails
• laundry facilities
• transport help, such as a disabled parking spot or local transport services

Apply for or renew a Blue Badge (GOV.UK)

You can:

• ask questions in the parents and carers group of Scope’s online community
• go to the Special Needs Jungle website for parent-led information and advice.

You could find out if there is a:

• charity specific to your child’s needs
• local online group or page for parents of children with special educational needs

Talk to your paediatrician or doctor if your child needs therapies, such as speech therapy, occupational therapy or physiotherapy. They will be able to refer you for treatment.

Getting a diagnosis for your child

Therapies and medical treatments

How to find a speech and language therapist (Royal College of Speech and Language Therapists)