Life skills to help your disabled child become independent
Young disabled adults often do well when they can take control of their lives and become independent.
Some parents may be unsure about how to help prepare children for adulthood or how to teach the skills they need for independent living.
Some parents might feel nervous and even a bit guilty about encouraging children to become more independent. The idea of them moving out in the future can also feel like a challenge.
Talking to people with experience
Speak to disabled adults and parents of disabled adults with a similar condition to your child. This can help you understand the barriers they faced and how they tackled them. They might also be able to share any information and skills they found useful.
Starting early
When your child reaches 14, start to think about how they might live independently. Talk to them about their goals and plans for the future. Start teaching them basic life skills at home, even if they cannot do the tasks themselves. This will help them become independent as they grow up.
This will also help you plan for education, accommodation and work.
Planning
Getting the right support or adaptations can take time. Talk with your child about what they want to do after education. Try planning together to help your child understand what they need to do and how they could do it. It may also help them to create other plans, either with you or by themselves.
If possible, talk about being independent and the options for moving out. This might include living:
- alone with occasional support or a full-time carer
- with a friend or partner
- in full-time supported accommodation
This can be difficult to talk about if your instinct is to keep looking after your child. Supporting them to be independent can be the best way to help. Talking can also give you time to prepare for:
- social care
- benefits
- finding the right accommodation
- joining a supported accommodation or residential care waiting list
- finding aids and adaptations
Housing options - see under 'Housing options for younger adults' (NHS)
It can also help you decide what life skills your child needs to learn.
Life skills
Teaching your child life skills and working with them to overcome barriers takes time. Let your child try things. You might be surprised what they can do now.
Try slowly changing your routine to give your child tasks that you would normally do for them. Work on a task at a time and let your child tell you when they need help. You could start with basic things like folding clothes or cooking a simple meal.
Around the home
Learning to be independent around the home can mean:
- writing a shopping list and buying food
- cooking and understanding healthy eating
- being responsible for their routine, like setting alarms and going to school or work
- personal hygiene, including handling food
- cleaning and doing house chores, such as vacuuming and dusting
- looking after health, including taking medications and exercising
Learning to do something can help give your child the confidence to do other things. A reward system or pocket money can also help your child to try new tasks.
Planning budgets and managing money
How you and your child decide to manage money will depend on:
- your child’s condition or impairment
- where they live
- if they are working or receiving benefits
- type of benefits
- handling direct payments
- your child’s personality
Pocket money can help teach the value of money, saving for something and how much things cost.
When your child is older, try showing how you manage budgets and any tools you use. Or you may need to manage your child’s income. Talk about a budget if you can. Decide how much will go on essentials, such as rent, bills and food. Then set an allowance for fun activities like going to the cinema or a meal out.
Warning Manage your finances with Income and Expenditure Hub
Scope has partnered with the Income and Expenditure Hub, a free online budgeting tool that helps you to create and manage your household budget. It can help you take control of your finances and any debts you may have.
If you cannot open a bank account
The Payment Exception Service allows you to collect benefit or pension payments without a bank account.
The service is only available if you cannot open a bank account.
You could also try:
Talking to people and socialising
If your child struggles with communication, encourage them to interact with people in restaurants or shops. Try getting them to ask for or point to their meal or pay for something they want. Repeating these tasks can help your child learn to do them on their own.
Making new friends and socialising can also help your child become more independent.
Meeting new people and making friends
Talk about any barriers they might experience, like transport.
Also try getting your child to go to a few groups or activities before leaving education or home. This can help them feel comfortable there and get used to socialising independently. You might also want to talk about a roommate if you think they will get lonely after moving out.
Aids and adaptations
Aids and adaptations to help with daily tasks can include:
- a specialist chopping board that will hold food in place
- a food processor instead of a knife
- an extendable duster
- alarms that use light instead of noise
- a flexible and lightweight vacuum or a robot vacuum
Disability equipment and adaptations
Keep children safe online (GOV.UK)
Learning aids
Your child can learn new tasks through:
- pictures or stories
- written instruction
- regularly watching or helping you do tasks
Techniques for teaching disabled children skills (Raising Children)
You could bring all of this together by:
- collecting favourite recipes they can cook
- creating a checklist of the tasks they can manage alone
- writing a list of things they need done for them. This will help your child and carers understand their needs
Making a life skills handbook
A 'life skills handbook' could help your child with daily tasks when you are not there. It could also help motivate them to do more things on their own. The handbook could include:
- instructions that break everyday routines into steps
- weekly or monthly tasks, like putting a wash on, cleaning the house or paying bills
- a ‘how to’ section for carers to understand your child’s specific needs
Work with your child to bring the handbook together and decide the best format for them. This could be:
- whiteboards, planners and worksheets
- picture stories
- folders or binders so you can easily add and remove things that change
- videos
- flashcards
- phone or tablet apps
- visual or vertical timetable
- activity pictures, words or symbols
- 'finished’ trays to signal when an activity is complete
Social stories (National Autistic Society)
You could also create a ‘passport’ of information or a 1-page profile to help others understand what your child needs. This might be useful if your child is non-verbal or finds communication difficult. They can use it for school, college or university. It might also be useful for carers or staff providing services, like in a cinema, pub or restaurant.
Transition guides and information
These websites have guides on transition:
Our employment services can help a young disabled person prepare for work.
Last reviewed by Scope on: 29/11/2024
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